Nazira Kelly's Fundraiser
We can fund a full-time postdoc researcher, supporting ongoing Smith-Kingsmore syndrome research.
Join me and help make a difference, please give today.
We are no longer accepting donations on this campaign, but there are other ways for you to support us today!
Our 5-year-old son, Ezra, was diagnosed with Mosaic Smith-Kingsmore Syndrome (SKS) when he was 2 years and 11 months old, after his third round of genetic testing. Ezra has significant developmental and intellectual delays. He has cortical visual impairment, speech and language impairment and battles seizures on a regular basis. Our wish for Ezra and other individuals with SKS is help improve their QUALITY of life with personalized, precision treatment.
Join us in supporting real change. Let’s support good in the world and make a difference. Help us accelerate personalized, precision treatments for people diagnosed with Smith-Kingsmore Syndrome.
Just a small donation will go a long way to helping us meet our goal for Smith-Kingsmore Syndrome Foundation.
#sunniestdayofhope #teamezra