Sawn Bostic's Fundraiser
Help me make a difference by supporting SKS research!
For every $1 donated, I will run 1 mile! Let’s load up the miles, give today.
Currently SKS patients and their families face overwhelming day to day challenges as the overactive MTOR gene wreaks havoc on the body, including disrupting sleep and causing seizures. Imagine living with an unpredictable colicky newborn for years. Or feeling jetlagged every day. This is what life is like for SKS patients and their caregivers. The seizures and lack of sleep have negative impacts on cognition, health, and overall quality of life for people living with SKS.
Smith-Kingsmore Syndrome Foundation is working to change all of this.
My friend Eric Kelly started SKS Athletes to raise awareness. Like many of you, I was unaware of this rare illness until I met the Kelly family. They fight the good fight everyday beside their young son Ezera. I was presented the opportunity to help and did not hesitate.
Your contribution today will help the Smith-Kingsmore Syndrome Foundation drive science further towards treatments and a cure. I’m fundraising for the Sunniest Day of Hope Campaign so that SKSF can assist each patient and their family with sleep, seizures and many other debilitating life factors by supporting research that will lead to targeted treatments.
Your donation to the Smith-Kingsmore Syndrome Foundation is fully tax deductible and not only brings help toward a disease but provides overall support to this worldwide community.