Brandie Buckner's Fundraiser
Help me make a difference by supporting SKS research!
Join me and help make a difference, please give today.
Currently SKS patients and their families face overwhelming day to day challenges as the overactive MTOR gene wreaks havoc on the body, including disrupting sleep and causing seizures. Imagine living with an unpredictable colicky newborn for years. Or feeling jetlagged every day. This is what life is like for SKS patients and their caregivers. The seizures and lack of sleep have negative impacts on cognition, health, and overall quality of life for people living with SKS.
Smith-Kingsmore Syndrome Foundation is working to change all of this.
Our Army Family, Team Kelly (led by Eric & Naz) fight everyday for their son Ezra, a six-year old SKS warrior!! We have known and loved them since we met in 2012 and want to do our part to help them win this fight for their son and everyone affected by SKS!!
Your contribution today will help the Smith-Kingsmore Syndrome Foundation drive science further towards treatments and a cure. I’m fundraising for the Sunniest Day of Hope Campaign so that SKSF can assist each patient and their family with sleep, seizures and many other debilitating life factors by supporting research that will lead to targeted treatments.
Your donation to the Smith-Kingsmore Syndrome Foundation is fully tax deductible and not only brings help toward a disease but provides overall support to this worldwide community.