Sapriya Childs's Fundraiser
Support SKS Research
Join me and help make a difference, please give today.
Many of you don't know Ezra or the Kelly family but their story has personally impacted me as a leader and parent which is why I am supporting their cause. I have watched them battle to find answers on HOW to support their son. And this is common for families with SKS because there aren't many answers out there. Your support enables the research to find sustainable ways to support these kids as scientists and doctors hunt for a solution.
Currently SKS patients and their families face overwhelming day to day challenges as the overactive MTOR gene wreaks havoc on the body, including disrupting sleep and causing seizures. Imagine living with an unpredictable colicky newborn for years. Or feeling jetlagged every day. This is what life is like for SKS patients and their caregivers. The seizures and lack of sleep have negative impacts on cognition, health, and overall quality of life for people living with SKS.
Smith-Kingsmore Syndrome Foundation is working to change all of this.
Your contribution today will help the Smith-Kingsmore Syndrome Foundation drive science further towards treatments and a cure. I’m fundraising for the Sunniest Day of Hope Campaign so that SKSF can assist each patient and their family with sleep, seizures and many other debilitating life factors by supporting research that will lead to targeted treatments.
Your donation to the Smith-Kingsmore Syndrome Foundation is fully tax deductible and not only brings help toward a disease but provides overall support to this worldwide community.