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Susan Dando's Fundraiser

Be part of the breakthrough!
Join me in finding treatments for Smith-Kingsmore syndrome!
Smith-Kingsmore Syndrome (SKS) is a rare genetic condition that affects brain development and leads to challenges like seizures, developmental delays, and sleep disruption. Right now, there are no targeted treatments, but science is making progress!
Our beautiful girl Carmen was diagnosed with SKS at age 9, after years of searching for answers to her challenges. The SKS community wrapped their arms around us, and their commitment to research helped give us hope that we will see significant improvements in Carmen's quality of life.
Thanks to support from the SKS community, researchers have developed fruit flies with SKS that can be used to test existing medicines. Now we’re raising funds to put those flies to work and search for treatments that could improve life for individuals and families living with SKS.
Your donation helps fuel the next phase of research, and brings hope to a community that truly needs it.
Thank you for your support!