Kristen Groseclose's Fundraiser
Be part of the breakthrough!
Join me in finding treatments for Smith-Kingsmore syndrome!
Join Our Journey to Find Treatments for Smith-Kingsmore Syndrome
Over twenty years ago, our world turned upside down. Our son Jack was diagnosed with profound cognitive and developmental disabilities—and for years, we had no answers. But we never gave up hope.
In 2018, Jack was diagnosed with Smith-Kingsmore Syndrome (SKS), a rare genetic condition that causes seizures, developmental delays, and severe sleep disruption. That diagnosis brought clarity—and connected us with other determined families worldwide.
Together, we founded the Smith-Kingsmore Syndrome Foundation to fuel research and support others on this journey. Thanks to you, researchers have created SKS-model fruit flies to explore treatment possibilities. Now, we’re raising funds to put that breakthrough to work.
Your donation powers the next step—bringing hope to families like ours.
Thank you for helping rewrite the future.