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Joy Rohde's Fundraiser

I know we can find a breakthrough!
Join me in finding treatments for Smith-Kingsmore syndrome!
Smith-Kingsmore Syndrome (SKS) is a rare genetic condition that affects brain development and leads to challenges like seizures, developmental delays, and sleep disruption. Right now, there are no targeted treatments, but science is making advances.
We are extremely lucky that Coco’s manifestation of SKS isn’t as severe as most - she has a great life despite some challenges. But this disease wasn’t discovered until 2014, and there’s so much to learn
Thanks to support from the SKS community, researchers have developed fruit flies with SKS that can be used to test existing medicines. Now we’re raising funds to put those flies to work and search for treatments that could improve life for individuals and families living with SKS.
Your donation helps fuel the next phase of research, and brings hope to a community that truly needs it.
Thank you for your support.