Mois de sensibilisation du Smith kingsmore syndrome

Join me in supporting SKS research this August!

Hi all,

This August, I’m fundraising for Smith-Kingsmore Syndrome (SKS) Awareness Month to support research into this ultra-rare genetic disorder.

SKS is caused by changes in the MTOR gene, leading to intellectual and developmental delays, seizures, autism, and other complex challenges.

[Insert personal connection — what drew you to SKS or why you're getting involved.]

I’m raising funds for the next phase of SKS research: using SKS fruit flies to test existing drugs that could lead to real treatments. These fly models were developed thanks to past support from the SKS community, and now we’re ready to put them to work.

It’s a smart, hopeful step forward, but continued support is essential to keep the momentum going.

If you’re able, I’d be grateful if you’d consider donating to my fundraiser:
[Insert link]

Thank you for taking a moment to support this important cause.

Best,
[Your Name]

This August, I’m fundraising for Smith-Kingsmore Syndrome (SKS), a rare genetic disorder that impacts brain development. I’m helping raise funds for the next step in SKS research: testing real medicines on SKS fruit flies to find possible treatments. This progress was made possible by past community support, and now we need your help to keep it going. Donate or share: [Insert link]

Thank you for supporting my SKS fundraiser!

Hi [Donor Name],

Thank you for your generous donation to my fundraising campaign for the Smith-Kingsmore Syndrome Foundation. Your support helps fund the next phase of SKS research - using fruit flies with SKS to test existing drugs that could lead to real treatments.

These fly models were developed thanks to earlier community support. Now, with your help, we’re putting them to work.

Every gift moves us closer to answers for individuals and families living with Smith-Kingsmore Syndrome. I’m grateful to have you on this journey with me.

I’ll keep you updated as the campaign progresses. In the meantime, you can learn more about the Foundation’s work at smithkingsmore.org.

Thanks again for being part of this effort.

Best,

[Your Name]

Big thanks to everyone who’s donated so far! Your support is helping turn fruit flies into real hope for Smith-Kingsmore Syndrome research!