Sarah & Dan Lepore

Sarah & Dan Lepore's Fundraiser

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Be part of the breakthrough!

Join me in finding treatments for Smith-Kingsmore syndrome!

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$3,150 towards $5,000

Smith-Kingsmore Syndrome (SKS) is a rare genetic condition that affects brain development and leads to challenges like seizures, developmental delays, and sleep disruption. Right now, there are no targeted treatments, but science is making progress.

After years of searching for answers, our son Charlie was diagnosed with Smith-Kingsmore Syndrome. Receiving this diagnosis was life-changing, giving us clarity and connecting us to a larger community. The SKS Foundation’s commitment to research offers hope that Charlie and everyone living with SKS will one day see improvements in their quality of life.

Thanks to support from the SKS community, researchers have developed fruit flies with SKS that can be used to test existing medicines. Now we’re raising funds to put those flies to work and search for treatments that could improve life for individuals and families living with SKS.

Your donation helps fuel the next phase of research, and brings hope to a community that truly needs it.

Thank you for your support!